Battling Alzheimer

Have you ever wanted everything around you to stop for a period of time, say a day, week month or longer, just so that you could get a handle on all that you have to do?

Wouldn’t that be the best thing? I mean, we could catch up on everything from giving some attention to the junk drawer to the weighter matters like making that eye doctor’s appointment, calling the adult day care center to see if it’s a fit for your loved one or rallying some family and friends to give you some much needed help. Maybe we could take the time to consider the future beyond dinner tonight and tomorrow’s doctor’s appointment.

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Well, it’s that time again. Time for A Recipe For Life. My goal, as always, is to provide you with delicious recipes that are healthy, inexpensive and simple. It used to be that the healthy part was the challenge, but today, it’s definitely challenging to find recipes that are healthy, simple, delicious AND inexpensive. Today’s recipe definitely meets the criteria. I hope you enjoy it as much as my family does.

Battling Alzheimer’s disease is difficult enough, so I hope that these recipes help to lighten your load a little.

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From the time I was about 9 or 10 years old, my mother encouraged me to keep a journal (well, she called it a diary).  Although I always enjoyed writing, I never understood why she bugged me so much to write my thoughts.  I figured maybe she wanted to read it when I wasn’t around.  Or maybe, she recognized my desire and ability to write before I did.  She surely never realized that the practice would help me to cope with caring for her as we, together, battled Alzheimer’s disease.

As a caregiver, you have a lot going on in your heart and head and journaling is a great way to relieve stress.

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  I talked with a friend yesterday. She could relate to the paradox of caregiver grief.  Being sad, on one hand, as she watches the disease slowly takes her mother away and on the other hand, being grateful that she still has her mother and is able to connect with her, from time to time. The conversation reminded me that caregiving and grief tend to go hand in hand; because caregiving usually causes a role-reversal, or at best a shift in previously established roles.  Yesterday, I talked about the fact that caregivers begin greiving while their loved ones are still alive. Today, I’ll talk about HOW caregivers grieve.

You have probably heard of Elizabeth Kubler Ross.  Regarding end of life issues, she was the uncontested expert.  She started out studying those who were diagnosed with terminal illnesses and she looked at the ups, downs, phases and stages they experienced.  Eventually, she discovered that those who have lost a loved one experience the same stages.  It is now widely accepted that the stages of grief that she described are applicable to grief associated with a myriad of losses.  With that foundation, let’s look specifically at caregiver grief that begins prior to the death of person receiving care

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Last week I talked about how to know if it’s Alzheimer’s disease and I ended the segment on Thursday with a discussion about stages one and two.  I promised that, for this week, I’d finish up the stages.

I thought it would be most helpful for you if I not only describe the stages, but also provide some information as to how, you as a caregiver, might prepare and respond in a particular stage. After all, as a caregiver, you want to know what is coming and how to deal with it.

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If you are like most caregivers who are battling Alzheimer’s disease, you are so tired that the very thought of driving to a gym, waking early to exercise, or taking time to put in an exercise tape stresses you and makes you feel even more tired and burned out.  But I promise you this - if you exercise 30 to 60 minutes per day, especially if you can manage to get outside and catch some fresh air and sunshine, you will feel much less stressed and more energized.

Exercise has numerous benefits, here are three:

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While college students plan their parties and high school students consider their weekend options; while your coworkers give thought to what movie they’ll see this weekend and family members consider how they might celebrate Easter, your plans remain the same. 

Whether you have dinner with family, attend a religious service or plan to stay home, one thing is constant.  You are a caregiver.

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